In life there are the things we can control: our professional paths, who we spend time with, what we get involved in. And there are things we can’t control. As the famous saying goes, “Shit happens.” And it’s true. Bad things happen, and we twist and turn and figure out how to rework our figurative dealt hand to make the best possible outcome likely… or at least more likely.
A long-time friend was born with heart difficulties. After many surgeries and years and years of taking medication on a regular basis, one of her kidneys recently failed thus leaving her on the never-ending list for a kidney transplant. She and her sister reached out to the Facebook masses looking for support, positive words, and donating one day of status updates to awareness and helping our friend get a new kidney. The response, just based on what I saw, was extraordinary. Luckily her sister was a match for her, donated one of her kidneys, and they are both in recovery. In a recent email she stated, “And yes everything is going well and (insert sister’s name here) and I are feeling better every day!” No doubt, her sister’s selflessness, strength, and love; my friend’s courage, motivation, and will to live make this story a happy one.
A family friend was diagnosed last June with pancreatic cancer. He has been fighting, for almost a year, a losing battle with one of the most incurable types of cancer. (This, by the way, is longer than many who are diagnosed pancreatic cancer.) But with the support of his friends and family (and maybe enjoying some Lou Malnati’s pizza) he will go at his own time, on his own terms, leaving a lasting impression on those around him filled with tons of love, peace, and warmth in our hearts.
These are examples of making ‘the best’ of the uncontrollable. Most of us are fortunate enough not to have to deal with obstacles like these but...
Then there are the things that to some extent, we can control but maybe choose not to. The choice to not get tested for HIV/AIDS. Of course STD testing is absolutely, unequivocally important nowadays. And I think movements such as the GREEN movement, the TRUTH movement, and advertisements about safe practices like the Gardisil shot are reaching youths. But there still exists an in-between generation of us where dating isn’t quite like our parents’ experiences, but it surely doesn’t compare to that of today’s teenagers, who seem to be overlooked. And as a result, we’re not even looking at our hand of cards.
Cancer, heart disease, and diabetes are so commonly discussed either through advertisements, a figurative ‘who’s who’ of survivors, fighters, and deceased. Everyone knows someone. But AIDS and HIV are not so commonly talked about comparatively speaking unless discussing infection in places like Africa where AIDS is rampant and as common there as cancer is here. Why is this?
An idea :*ding, light bulb*AIDS is something we haven’t nearly figured out yet. There is no cure, similar to cancer. There are medications to slow the virus but nothing to rid it completely. There are still so many question marks associated with AIDS that people, naturally, fear what they don’t know. Because it is a ‘silent killer’ meaning, one could walk around unknowingly carrying this disease for months or even years without feeling a symptom. Yes, it is scary. And that’s all the more reason to talk about it. No, it is not completely overlooked. There are national and international charities to support AIDS research. Millions of dollars are poured into it. But it is not given adequate attention in this country given its prevalence. It’s not just drug users, homosexuals, or the sexually promiscuous that need to worry about this. It concerns anyone who is sexually active and practices unsafe sex. And not just sex; it can be transferred through a blood transfusion, open sores, or simply through childbirth. Modern sanitation regulations require thorough analysis and diligence in high-risk situations. So yes, that aspect is being managed but on a larger level. What about on an individual level? So ultimately, we’re being uber-diligent about our sanitation practices but we’re being reckless in our personal lives.
The problem is that AIDS has scared us into some stage of paralysis similar to the feeling that you get when you have too many things to do but not enough time. You know you need to start, but you don’t know where or how thus feeling overwhelmed and not taking any action at all. It’s scared us to the point where we figuratively cover our eyes and say “I don’t want to know”, but not to the point where we constantly make safe sex a priority. We need to get to the point where we say “I need to know.” And take some responsibility for our actions. Guess what… We live in America where AIDS isn’t an out-of-control disease like so many countries in Africa. Chances are, you’re fine. But a) it is not your (or my) place to decide for someone else whether they contract this disease or not, and b) we owe it to ourselves to get tested. We need to know. We need to know so that, if we are dealt that hand of cards, we can deal with it just like my examples above did. We need to know for our conscience, for our safety, and for the safety of others.
There are free clinics to get tested or you can have blood taken at your doctor. When you go in for a routine checkup, have an HIV test added into your routine. You’re worth the investment whatever the outcome. Would you ever tell my friend who just fought for her health once again that she should have stayed silent or ignore her symptoms? Would you ever tell a cancer victim not to fight? So G.Y.T. as MTV says. (Yes, I still watch MTV. The Real World still rocks.) Get Yourself Tested. Make HIV and AIDS awareness a bigger part of your life. It doesn’t have to be all-consuming. It just has to exist.
For more information on HIV and AIDS awareness check out http://www.aids.org/ or http://www.stophivaids.org/. For testing center locations in Illinois check out il.tstd.org or nationally at http://www.hivtest.org/.
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A quick note, folks:
ReplyDeleteI know this is a bit more serious than I have been in the past but it's a topic that's come up more than usual in my life recently through a couple of modes.
(Mainly going to see the musical RENT, and finding out about an aquaintence diagnosed with HIV. No, you don't know him/her. And no, I won't tell you who it is. ;-) )
So anyway, I felt compelled to write something. As always I welcome feedback. This post specifically I would love if you contributed your two cents either facts, stories, or something sort of inspirational to encourage people to really take responsibilty of this aspect of their lives.
As always, thanks for your support! More laughs to come! (I've gone over a week without walking into something, tripping, stuttering, sputtering, or making a significantly noteworthy idiot out of myself. WOOT! *knock on wood*)
All the best!
Becky
This has been a paid public service announcement from the Becky Cares Foundation. We now return you to your regularly scheduled program.
ReplyDeleteNext, on Survivor...
:)
I kid, I kid. Great post. :)
Becky----
ReplyDeleteIts funny. We use things like blogs and Facebook for 'fun' things. It is not until something really hits home and rears its ugly head in our own
backyard that we are faced with ANY disease that is terminal or changes quality of life.
This is a great post. And for those of you who read the comments on blogs, do as our wise friend tells us...GET YOURSELF TESTED.
Without going into many stories that may, or may not, bring a tear to many peoples eyes, I have been ALL to close to HIV/AIDS. I have seen friends go all too early and I have had loved ones that have been diagnosed. (with no complications. (*Rayme does the sign of the cross*, sorry I know you are Jewish.) What is worse, I find out many months or even years later that an acquaintance of mine has succumb to this awful infliction. This is something that affects everyone you have touched with RW, DC, aTMoL.
Again, I urge you to GYT. Or for the rest of the worlds sake, please go see RENT. It might prompt some action to see innocent lives touched and ended by this killer.
To comment on the fact this is no disease for only one nation or region of the world; as much as I love the GAP(okay, who am I kidding, I really don't) AIDS in Africa is only the tip of the iceberg. While I commend a major retailer taking action and contributing to society, HIV/AIDS is not just a regional infliction. The (RED) campaign only donates to people in Africa living and dying with this disease. If you want to do anything, lets start grassroots campaigns and work with organizations that are on our shores. I have to repeat here, NO life is more important than another, but this is a PANDEMIC. Not an EPIDEMIC.
below are some organizations that are local and support the community.
www.behiv.org
www.chicagohouse.org
www.aidschicago.org
www.chicagospiritbrigade.org (this was my former cheerleading team that donates all performace donations to charities that support people living with life threatening illnesses(not just HIV/AIDS, but a major portion of its existence)
Sorry Becky, I will step off the soapbox now.
Thank you for this post, I can only hope that is touched just one person as much as it has touched me.
Carry on, live on and laugh on!
Awesome comment, Rayme. I'm glad you liked it and your information is very valuable. Thanks much!
ReplyDeleteI agree with getting yourself tested. I do actually every 3 months. The reason though is that I try to give blood every season, so my blood is tested every time.
ReplyDeleteI think the problem in American society though is that we look at cancer as a disease caused by bad eating habits and bad health. You smoke and get cancer. You eat crap all the time and end up with cancer. The breast cancer thing is mostly also to protect women out there, since again...it's a serious matter that has nothing to do with...
...SEXUALITY.
AIDS and HIV, despite how much we're told that you can get those diseases with blood transfusions, etc...people still tie it to things they don't like to talk about normally.
We only want to talk about sex when it's exploits of men "mastering" women, or women talking about what feels good, or what guys are true to their word and who's lying. We don't want to really think about the idea that every time one engages in unprotected sex we run the risk.
Why aren't more people getting tested? Same deal as to why many avoid going to the doctor. Psychologically many believe if they don't see the doctor, then everything is fine. That we should only go when we're in great pain or feel very very sick.
I'm sure many guys out there are fearful to get tested, mostly because they fear finding out being the "pull out champ" got them something they didn't want. They don't want the fun to end. They want to keep jumping from girl to girl and not wear a condom...and finding an illness will only ruin that behavior.
I think the US needs to first wake up and accept that people have sex before marriage with the purpose being just some hormonal fun. You notice condom ads are NOT allowed to say how condoms prevent pregnancy? This was done because parents feared the ads would tell children it's ok to sleep around and condoms would protect it all.
Funny how they worry about those ads, but have no problem with pop stars dancing around on stage or in videos barely wearing anything. Like that doesn't tell children to get laid?
So I'll keep playing it safe, simply because one cannot trust what they might be engaging in when sex does happen. I'll keep getting tested because I find it terrible to blindly and irresponsibly spread disease. You're either part of the problem or part of the solution.
Great stuff Becky.
D-Jam,
ReplyDeleteGreat post. And I do think you're right about the fact that this disease is associated (regardless of whether it's actually spread by) sexuality. My point in saying that is that people need to realize that AIDS and HIV aren't spread SOLELY through sex. It can be spread other ways as well. It most definitely is a main source but not the only source. But it is also one of the sources we can control. So, realistically speaking (as you said) people are not abstinate. Realistically speaking, people get "in the moment" and don't think clearly. But that doesn't mean we have to be irresponsible. We can still be sexual people without being reckless.
So that's my point. I'm not making judgements on those who enjoy a healthy sex life. In some ways, I really admire that. But I think it's very important to at least be in-the-know if you're going to lead that lifestyle, and even if you're not. Like I said... My point was about AWARENESS and responsiblity. Responsibility doesn't mean giving up sex. It just means being an adult about it.